Well, Heidi and I just got back from Michigan, where I worked with several blind teenagers on mobility and orientation skills and a couple of them with guitar practice. Heidi was an art volunteer and helped the kids create their own personal art pieces, some abstract and some more realistic. It was amazing to see. The camp is called Braille Beats and is an intensive that I’ve attended as a teacher twice before. It is remarkable to see a bunch of blind teenagers often go from having no confidence in moving around and exploring their environment by themselves to growing into competent people who can be placed in a brand new environment by themselves and discover how to navigate through the situation, often outdoors in the woods, and find their ways back to places with which they are more familiar. It is also humbling to see so much musical talent. I will continue going as often as I can.
One of the things that was not so fun was realizing that my lungs are, for some reason, getting much worse. This may or may not be due to the cancer itself, but it feels like I’ve got only half the capacity in my lungs that I used to have. My fatigue levels have also escalated, maybe as a result of that. Consequently, I will be seeing a pulmonologist as soon as possible.
I would like to throw a request out to the readers of this blog. It is obvious through my studies of research in this field of fighting sarcoma that possible true cures have been suppressed by large drug companies and the FDA. I would like to put out a call for some hard core help in researching. I need helpers who would go to the online archives of all online medical journals and periodicals. Find articles within the last 20 years about possibly finding cures for sarcoma. I’m looking for articles that may have only appeared once with no follow-up, or perhaps, with some promising follow-up at first, but then put down by the FDA or other companies. These would be the biggest hints to finding the possible cures that have been squashed by large corporations, hoping desperately to keep the enormous profits brought in by selling drugs that allow the body to just die slowly. I’m not interested in dying slowly, nor am I interested in shelling out my money and my insurance to a “possible cure” that is only a large company continuing to dry me out. If you are game for helping me with this, remember that my sarcoma is Leiomyo Sarcoma, the largest mass is in my sinuses, It’s probably extent from me having radiation to fight my Retino Blastoma as a child. I am already taking inhibitors to prevent further angiogenesis. Please help me. It’s very important will be very grateful.
All right, friends. I’m extremely tired from getting back yesterday. I think that it’s an early to bed tonight. Peace and be well for now. Thank you all for your continued help, prayers, and good vibes. They help me keep it together in the meantime.